There is something that happened to me when I realized my
son was going to face a different life than expected, along with the rest of
us. My mom meter jumped up and by that I mean I thought I had being a mom
figured out for the most part but all of sudden I discovered I had to step it
up a notch. The mom I already was wasn’t going to be enough in my head, I had
to be better. Looking back on that feeling you could even say it was a necessary
even without autism being part of the story, I just didn’t know it. My awareness of life and people in general changed.
It’s a
hard thing to explain but some things changed for me and many of those changes
came from seeing things more clearly. I had to pay closer attention to life in
general. The meaning of support changed and how people go about doing it. I was
almost forced to take a harder look at the people around me and their actions
because the pressure I already felt as a mom was and is a big challenge to
wrestle with. I had a couple good friends who never wavered and even grew closer
to me from this change. I call them my two Jan’s! One Jan was already a
blessing in my life and remains that way. The other Jan was my neighbor who
reached out to me and gave me nothing but support and friendship. Both Jan’s carried me through and they may not
even realize it. Then there were other people who just slowly faded away and it
seemed by choice.
Some of
the little things in life that before I could push through weren’t so easy to
push through anymore. Those negative forces that come into life and kick you
from time to time weren’t acceptable on any level anymore. I also realized I
had a lot of those forces that didn’t seem too bad before but they started to
become huge burdens. I had to let them go because emotionally I couldn’t afford
to spend time on things that hurt my spirit at all. You see when you spend day
after day trying to understand your child and many of those days you might end
up on the floor crying right next to them, you can’t take in those burdens as
easily and process it all. Then get up the next day and be the very best you
can for what’s coming next.
I guess
you could say his processing challenges started to make me see my own
processing challenges. I was and still am trying to keep up with him on a daily
basis and the outside issues that some people bring into life or even bring
into your life by not being there, become too much. When you spend all day
working to ease things, keep up with your other children and ensure they get
the love they deserve, fending off the public, and discovering who really wants
to be there for you things become very clear. You start to see how much energy
you have given things that didn’t require it. You learn who truly cares to be a
part of life in a healthy way. I learned some people gave us more support than
I could ever have expected and some people gave much less.
It’s
interesting how something in life like an autism diagnosis can reveal a side of
people you never knew was there, good and bad. Or maybe even you knew it was
there and when life changed it just became easier to see. My eyes opened to the
fact I was too far from my family and we needed them all along but it was time
to do something about it. My eyes opened to how many people are really
uncomfortable around a child who is different and will actually blame a mother,
even people close to you. I learned when you’re not the parent who cuts loose
on Friday night at the local bar; people fade out of your life, not a bad
lesson by the way. I learned kids are the most understanding sometimes because
before we moved every single kid that came to our home met Phillip with a huge
smile and didn’t see his autism at all.
The
most important thing I have learned is life is too short and too awesome to
spend on things that just steal your energy. I need all the physical and mental
energy I have so I can put into being the mom I need to be. The mom I wish I
would have known how to be 14 years ago when I first became one. I was never a bad
mom but I truly didn’t know how much better of a mom I could be until I was
forced to learn. It’s almost like when the reality hit, it was life saying to
me, “so you think you have it all figured out? Not yet you don’t.” The simple
word autism slapped me right across the face and I knew nothing. It’s on odd
feeling to be pretty comfortable in your knowledge and one day life humbles the
hell out of you because you just realized how ignorant you really are to the changes
coming your way. Well played life! I have learned more in three years than I
could have ever imagined learning in an entire lifetime and I know I will never
have it all figured out, but at least I am seeing clear enough now to give it
my best shot.
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