Autism support groups via Facebook are wonderful and full of
supportive inspiring people who take time from there day to sit down and really
care about how others are facing challenges. Some offer advice as best they can
and some just let you know they are thinking of you. Both are encouraging in
every way, especially if a parent doesn’t have very much understanding in their
personal lives. I have met some truly amazing people on these groups, both
living with autism themselves as adults or raising a child with the difference.
Every
once in a while something happens that I think gives everyone in the group a
reason to feel frustrated or upset with someone else for an opinion they don’t
like. It really doesn’t happen often but when it does the tempers flare. It can
range from a small disagreement to one that everyone could say something about
but no way to keep from offending another group member so best to stay out of
it is probably the general opinion. There are also those sick minded low life Facebook
prowlers who may pose as an autistic person and will mock the difference toying
with a parent’s desperation to care and help. I can only guess a person would
do this for the gain of personal information or self entertainment. I won’t dig
much further into that because a situation like that makes me feel a strong desire
to vomit.
Yesterday
there was a debate regarding medication. Interesting topic to me because when
my son was first diagnosed one of the first comments made to me by many people
was, don’t medicate him. Always caught me off guard because the thought had
never even crossed my mind, nor did my doctor ever speak of it. The debate was,
one parent said don’t medicate and another felt she had to. Needless to say the
debate got ugly but a comment was made that actually did put me on the defense
for a moment. This woman stated something along the lines of; parents who don’t
support medication don’t understand what true autism is. When I read that I was
actually offended because I didn’t know there was hostility from parents
towards the different levels of autism and this is just one person. I asked her
if she could clarify what that meant and she did. Still a little hostile but
when I really tried to wrap my mind around her situation I could literally feel
why she felt this way. True autism may not have been the best choice of words
as it was more the severity of issues she has faced with her son. I could
understand why she felt a bit hostile reading other parents challenges that maybe
in her situation would be huge progress.
Its
true many kids just don’t require medication to live daily but many kids really
do and parents are forced to medicate to ease a child from different issues we
may not understand. The emotions involved with having an autistic child are
hard enough when it comes to society’s judgment but when you have no choice but
to try different options that may or may not work, I would think the judgment is even more difficult
to tolerate. My heart breaks for parents and kids who are trying different medications
and it ends up making a child worse and the parent isn’t heard when they
discuss this with a doctor. They just keep trying because all they want is to
see their child have peace. The again sometimes something really does bring the
peace they are looking for.
With so
many questions surrounding autism and doctors having the same unanswered
questions medication has to be an extremely difficult choice. There are so many
what ifs or side effect concerns that you can’t answer until you try it. Even
the doctor won’t know but when a parent has to choose between watching their child
possibly hurt themselves and trying something that may work, it’s easy to
understand why. An even harder part of the process would be to trust the person
who tells you what to try because autism is a complete mystery.
I
personally wouldn’t medicate but in no way does that mean I can’t understand
why someone else would. I would say true autism is every case diagnosed because
you really just can’t compare one to another. Yes there are different
severities but not one person who is diagnosed or one family who is challenged
with it doesn’t face judgment. Aside from autism, human beings spend way too
much time judging and not enough time understanding.
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