In all the awesome things autism brings to our lives and
there really are countless things I appreciate about the difference, there are
also little things that in all honesty can be a weight on my heart. My son is
reaching three and I guess you could say his autism is much more clear now when
we are out an about. It used to be it was a temper tantrum that made the autism
shine through, but now you really can see it when he is just being himself. The
wandering never stops, the distractions are constant, and not speaking is a
bigger issue now at his age.
Nearly
every day I see things that make me wonder if parents realize how privileged they
are and if they really truly appreciate it. I think many parents with an
autistic child see these same things everywhere they go. A little girl the same
age as my son runs up to her mom and expresses what she wants by saying it and
mom isn’t listening. Maybe I see a family in a grocery store and they have a
toddler who is sitting in the cart enjoying the ride. I will see a mom or dad
walking and their child is walking behind them and I notice they don’t even
have to turn around to make sure they are still there. The smallest privileges that
I know they don’t appreciate as much as they should. If a toddler is thirsty or
hungry they tell you but I have to constantly offer a drink and food or
distractions will prevent him from doing it. He doesn’t understand personal
space so I am always there to guide him and following me is a rare treat.
All of
these things I accept and I have adjusted to because he is my son and I love
him with every fiber of my being. I will do what I need to do for him every day
of my life when I am needed and that is a natural instinct. I appreciate the small
moments of celebration when he expresses himself or stays calm in an
overwhelming situation. So what weighs
on my heart from time to time? I have never heard my son say I love you. I know
he does because he shows it all the time. He is very loving with his hugs and
kisses and I see the love he has for all of us. The fact that he can’t say it
is hard for me because I think he wishes he could say it back to us. Many
things I know he wishes he could say but as much as I want to hear it I can‘t
imagine what it is like to be unable to say it.
I am
not an autism parent looking for pity over this. I am an autism parent sending
a message to any parent who hears I love you from their child. When you hear
it, feel it like it’s the last thing you will ever hear. Say it back like it’s
the last chance you will have to say it because it is a privilege. So many
things that are going on around you that are reasons to celebrate and be grateful
for every second with your child, and it could be you’re missing it. Autism
parents mention all the time the things they see and wonder if the parent
appreciates what they have. People might think with a child who has autism that
we feel sorry for ourselves or are broken but to me broken is being unable to
really take in what is right in front of you. I see broken parents all the time
and I can say most of them do not have an autistic child. On that note I need to sign off because there
is a little boy standing in front of me and he has I love you written all over
his face.
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