There is an element to keeping things at ease for my son that
I believe without it, his life would be painful. Patience and I am not talking
about typical patience most parents practice but extreme patience to the point it
could be classified as a super power.
I see a
lot of people force change in a child with autism and have even seen other parents
root them on for being in control and making it happen. I don’t really think
anyone is in control when a parent is emotionally exhausted and a child is completely
stressed out. Change is so hard for an autistic mind but I have found with
extreme patience it’s not impossible and it’s not painful for anyone. Changes have been eased in very slowly here
when they need to be and by slowly I mean months sometimes.
Everyone
has some degree of insecurity when it comes to changes and especially unexpected
ones. I personally like change but at the same time my mind has to adjust to it
before I feel completely at ease. Autism is the same as you and I when it comes
to this but the one difference is the mind can’t grasp it so quickly and
easily. I see this about my son and forcing him to adjust as quickly as I can
does cause a tremendous amount of stress.
This became
very clear to me when I had the ridiculous idea that I was just going to stop buying
diapers and get this boy potty trained. At the time I felt I was going to
flat out show him what needs to be done and he will adjust. Looking back on
that decision I can’t believe how foolish I was for thinking that was some kind
of grand master plan that would work in my favor because it didn’t work in
anyone’s favor in any way. As soon as it occurred to me what I was trying to
force I stopped the process because the stress I was causing my son was not worth
it. We have made a bit of progress over months with the process but only two
things have happened. He is now recognizing wet is not fun and he now verbalizes
when he is wet and he wasn’t verbal at all when I tried my master plan. Doesn’t
seem like much but for him these are huge steps towards a change. I was told by
an autism advocate a year ago he was ready to potty train because he is dry at
night and if he was not programmed the way he is, that may have been true but I
can’t imagine the damage I might have caused if I tried to force him every time
I was told it was time by people who don’t understand him. I was also told he would
never reach the point of progress he has made without intense therapy with
three different specialists that matched a schedule of a grown adult’s full
time job. We never made it to the second appointments for that because the
people involved did not understand him and he regressed immediately. That
may have been the right approach for another child but not this one.
My
point today is change is hard and yes some changes just have to come fast and
we have to deal with it the best way we know how but some
changes are ok to take time making. Even a very long time if that is what a child
needs to ease into a secure feeling. One thing at a time and that one thing can
be small to the eyes around you. If you have overcome one small step towards
the goal it’s not small to a child with autism, it’s huge! Not only is it huge
to feel secure enough to make one small step but huge in a child’s security in
how we can help and understand. In order to feel at ease with the change my son
has to feel ease with me and anyone else who is helping him move forward.
Move forward
at a pace that works and that pace might not always be what you are told. Nothing
is completely clear when it comes to autism but communication comes in all
forms. If a child is regressing, lashing out, and showing clear signs of stress….slow
down, slow way down. Pull up that patience super power and use it because the
result is more than worth the time.
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