Yesterday was a day a cold hard reality slapped me right
across the face. It took most of the day to accept this reality and know that
it is more powerful than anything I can change in the blink of an eye. Baby steps
and with the help of so many people this reality could change but when I laid
down last night to sleep I had to tell myself, this is the way it is going to
be and I have to find a way to understand that.
There
is a stigma on autism that many people believe to be true and maybe in some
ways it is but it is certainly not a fair one. Yesterday when I said the word
autism the conversation when to directly to discipline and how to handle my
sons behavior. The problem was I hadn’t stated my son had issues with his
behavior. I know many people on that statement alone would say…but he has
autism.
Phillip
and so many other kids are not burdens in the world but the world becomes there
burden. I don’t look at the challenges autism brings as discipline problems
because his nature is good. He never tries to hurt anyone and he has a genuine
interest in everything that actually keeps him too busy to attempt to be a
naughty boy. The only time Phillip is hard to manage is when the world comes
crashing down on him and this no fault of his own. Knowing this it makes it
hard to know so many people feel autism and bad behavior go hand in hand. When I
am carrying him out of a busy environment and he is upset, this is because his
mind isn’t making the change as fast as it needs to. Then he gets a wave of
feelings and his mind also has to get a hold of that. Both of these things at
the same time cause a challenge. He has to learn to cope with that collision
and I believe he will with patience and time. He is already learning his own
mind and using some skills to calm himself when he feels that collision coming
but he is three and he has a long way to go.
Yesterday
I also came to another reality but not such a hard one to accept. I think people
want to understand autism and do listen but the complexity of how each child
operates is very difficult to grasp. Some people truly have no understanding
and it is much easier to view a child as naughty then it is to understand the process
of an autistic mind. I can blog and blab my mouth until the end of time and there
will still be an inability to grasp the difference. They hear what the media reports and they
know padded rooms and restraints are used. Immediately the view of someone with
autism is distorted to think these tactics are necessary to control such out of
control children. Then again that’s a hard thing to argue to because even some parents
support those tactics, because they haven’t found another way…yet.
Maybe
in time this stigma will not be so strong when it comes to our kids and maybe
in time people will discover new tactics to help. Adults with autism play a key
role in the progress and listening to how they would have liked their own struggles
handled by others. If people will listen to celebrities like Jenny McCarthy,
who gave her child bleach enemas, why are we not utilizing the logic of adults
who truly do understand?
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