It finally hit me the other day, the crash of autism
information overload. Nearly to the point I was going to go into my own
meltdown and nothing would have helped. I am all for building an understanding
and acceptance in fact it’s all I want for autism, along with an education plan
that gives them all a fair chance in a school system.
Advocacy,
research, healing, therapies, vaccine propaganda, and If I saw one more baseball hat
with a puzzle piece pop up on my computer for ten dollars I was going to throw
my own hat in and wash my hands of it all. Well, not autism because that is
here for good and I am perfectly comfortable with that. I finally started to
realize why people can’t or don’t care to understand autism and it actually
made me a bit angry. Not only is it a complicated difference but all the media and
networks connected are really just one big mess. Don’t get me wrong they do
great things and those things are needed but who is deciding what those things
are? Is it people who have lived years with autism because I am confused as to
why all these things are going on yet no one can find great resources for their
children. Yes, some people are lucky enough to find excellent systems but there
are so many who are just left standing in one place.
Then I
see the new line of school supplies Autism Speaks has created to sell through Wal-Mart.
Autism Speaks is putting a ton of money into research and they are a huge
system working for autism. I had to wonder what profit Wal-Mart gets from that
deal. It’s a major corporation and they don’t do anything out of the kindness
of their hearts, so there has to be a substantial profit or large market for
what they sell. When did autism become a commodity and who decides school
supplies is going to help families? I know there is more to it then what we see
but how ironic the worst place to take my autistic child is the one chosen to
distribute such a silly product. Even if I needed school supplies and at this
point I am not sure, wait I am positive, the school system where I live is not
set up for educating an autistic child the healthiest way possible. The irony
all around is just too much for a parent and I know I am not the only one who
feels this way.
Today I spent in recovery from the
wave of autism chaos most of America is wrapped up in. One of the things that
helped me get back on track was a young man at the grocery store yesterday. He was
the box boy and was playing a bit with Phillip. I could see he was excellent
with kids just by the way he interacted with him even if Phillip didn’t react like
most kids would. He carried my groceries out the van and we chatted a bit. I
explained to him that it is hard for a stranger to get a smile out of Phillip
and it was a good thing to see. He asked me why he was so shy and I told him he
was autistic. This is the part you feel the apologies rushing towards you like you
just told them you had a death in your family=0. Rarely is the reaction
anything different than apologies and discomfort but at that moment his eyes
lit up and he smiled a huge smile towards Phillip. That’s when he said “my
brother is also autistic.” He said this with great appreciation for autism and
for that I wanted to hug that kid right there in the grocery store parking lot.
Glad I didn’t or I might be writing this from a padded room. Hugging the box
boy is not a socially acceptable thing to do…but his reaction wasn’t what I would
call the social norm either.
So there it is. Buy pencils, hats,
a necklace or magnetic bumper sticker for your Minnie van. The only real thing
that is going to create understanding and awareness is having your life touched
in some way by autism.
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