We have become very restless around here and by 8:30am my
little man is following me around with clothes and a sweet little “we should go”
that comes out muffled but still comes out. So today I decided to take him to
the mall because he likes it there no matter how much I don’t. There is a funny
thing that happens when we are out in public and especially in a big place like
the mall. My verbal reminders and guidance almost never stops. Right along with
some physical guidance to get him pointed in the right direction if he is too
focused on something.
We
walked about half way down the mall and the entire time I am saying his name to
keep him close. I am consistently physically moving him out of people’s way
because for one people can be rude and don’t move and for two he is completely
unaware he can run into people or get ran over by people. I repeat his name
over and over and use my hands to gesture him in the right direction and let me
tell you this is more exhausting than one might think. Exhausting because I
always have to think and keep him moving along safely. Most of the time he does
not look forward and while he is moving quickly his eyes are moving all around,
often still looking at something that he has passed by. I have to tell him to
look out or look up all of the time and I end up acting as the part of his mind
that is not doing what he needs it to do.
Quick
trip to the mall doesn’t sound so challenging doing this but this is something
I do a lot. Nearly everywhere we go that is big, busy, or new I become the
other part of his mind. The part that sees what he does not and tries to keep
him directed. At the same time I need to do my own thinking if I can and by the
time we leave, that may or may not be a peaceful goodbye, I am mentally
drained. Today was not a peaceful goodbye because I turned my head for one
second to look at a shirt and he took off. Once I caught him we had to leave
the store because his goal was to investigate the dressing room. Not a good
thing for the ladies trying on clothes and I had no choice but to pick him up
and physically remove him, with a man sitting watching and giggling at his
desire to crawl under the doors. That funny man probably thought he was just
being a boy but what he really after were the mirrors in the rooms. That was
when I had a screaming boy half my size and thankfully the van was not far
away.
He didn’t
care about the ladies in the rooms in fact he may not have even noticed them because
the mirrors where his main objective and right along with being autistic, he is
as stubborn. Once we reach the van and I have him secured in his seat that is
when I get to shut my brain off for a moment. Before I start to drive of course
but it’s the moment I don’t have to think for two of us and I get a quick
break. It’s not always this way because places he can run or places he is very
familiar with I can relax although there are very few places like this. Home
and my parent’s house are safety zones but even a crowded park without a simple
fence that stops him from wandering, keeps me thinking for the part of him that
hasn’t come yet. The challenge of keep up with him is not just following or
trying to understand him, it is a full time mental work out. I am doing this so
much it can be hard to shut my mind down at the end of the day. All kids go
through this faze and parents are on guard teaching a child how to gage the
world around them but the difference is for an autism parent this is not just a
faze or part of the toddler years that passes quickly. This is constant and in
many cases it doesn’t pass at all.
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