Last week I wrote a blog about routine and the isolation of
an autism parent. On a side note of that blog, we all still want the invite! We
just want others to understand when we have to say no. I noticed a drop in my
own life of invites and wondered if that was the cause. It could just be my
personality but I going with the blog because that would mean someone is
actually reading it. LOL all in good humor and on to the days babble.
Phillip talks a whole lot of gibberish. Always
has really and the words just have taken a very long time to come together.
Rarely does he use two words at once, in fact never, and even though I talk to him
like we are having a conversation, it’s really one sided. Many of the sounds he
makes are swooshing sounds or his face appears to be telling us something very
clear but his words just don’t make any sense.
When a
moment comes that is clear and that verbal connection is made it is the greatest
feeling in the world and you cling to that moment with all your strength, just
in case the next one is far off or it was a fluke. Last night Phillip and I were going through
his bedtime routine and saying goodnight to everything we could see while
walking up to the bedroom. He just grins and goes along with it but honestly it’s
me saying goodnight to everything and he is just entertained by it. We crawled
into bed and all of sudden he looked at my face, smiled and said…”Happy”. Yes I
made sure to ask him again to say it just to make sure that was what just happened
and he did repeat it with a smile. It’s a moment that is nearly impossible to
put into words when you rarely hear any words from your child and a word that
is based on feeling, a good feeling, is amazing.
This
morning I was greeted with Phillip once again making his swooshing noises and
giggling. He will take his hands and move them around with the sound and I can
say I have no idea where he got this or why he does it. I can tell you he
attempts to say Mashugina which is Yiddish for troublemaker and sort of family
joke around here. It doesn’t come out clear but a bit funny that difficult word
is one he attempts and has that SH sound to it he likes to try. While he making his swooshing sounds I was
trying to guess what he was saying. I asked him if he was trying to say
Mashugina and he shook his head no repeating the sounds. Then I said to him…”is
it the motion of the ocean?” That is when he completely stopped, looked at me
and said…”huh?” with his little nose crinkled up on one side.
In an
attempt to desperately figure out what he was doing and no I still have no idea
there was another moment of communication and the fact he responded the way he
did was a complete success in a mind boggling and somewhat frustrating moment.
Moments like that open the door to knowing more will come. Maybe not again
today or even a month from now but it will come and when it happens sometimes it
seems as though he knew how all along it comes out so easily. Like he broke
through whatever it was that was holding it back.
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