Something happened yesterday that was literally beyond words
and I didn’t see coming. I did, but not for years. I didn’t blast it on to
Facebook right away because I really just sat back and wanted it all to myself
for just a little while. It was that monumental and awesome!
Phillip
has been making huge efforts to speak more and many of the things he is trying
to say are actually coming out, just in the past few days, as communication.
Not just words but words spoken at the right time. He has put two words
together at a time and although not clear the sounds are coming together. It’s
been an answer to prayer to say the least and with every single word he says I
am reminded of how strong he is and how much we have conquered so far.
Exactly
one year ago he was diagnosed with autism and he was completely lost in another
world. Getting his attention was nearly impossible and screaming fits were a
daily event. No one understood him but me, or at least I was really beginning to
see the world through his eyes more clearly. He was flapping his hands,
squinting his eyes, spinning, and not one sign of communication. Even touching
him was not an option for some people around us. I remember a day someone who
was close to us was holding a baby who was a bit younger than him and this person
looked at me and said “at least I can hold this one!” To be fair this person
had no idea how that statement hurt but it did. I remember feeling like things
would never get better and he might never live up to what everyone felt he
should be. On a daily basis I hurt for him because he was trapped inside
himself. All I wanted in the whole world was to bust him out of there even if
it was just a little bit. I watched other kids talking away to their moms and
dads and wondered if they fully appreciated hearing the words that never
stopped coming at them. The one thing I
always paid close attention to was when I child said “I love you” to a parent
and if they knew how damn lucky they were to hear it.
I have
not missed one night of my son’s life so far without saying to him “I love you”
and giving him a kiss. I have been able to get him to repeat the words one at a
time which is huge progress and I figured one day he would add the words to the
nightly routine, one day not anytime soon. A little part of me also was a
little worried that’s all it would be is, routine. Yes I know that is a bit of
a selfish worry but I am not ashamed of wanting to hear it and I have not had
much expectation on the subject. I just carry on knowing he loves me because he
does show it.
Yesterday
I was sitting in the kitchen and he crawled up on my lap wrapping himself
around me like a little monkey for a hug. He wrapped his arms tightly around my
neck and with his little face right next to my ear said “I love you.” Clear as
day and even though you would think I would jump for joy and shout to the mountain
tops I didn’t. I quietly said to him “thank you Phillip” and tears instantly started
to come. I managed to get out an "I love you to" through one of the
happiest cries I have ever had and he just began to giggle. He sat up turned my
head sideways and kissed my cheek then hugged me some more and continued to
giggle. It was a moment I did not expect, wasn’t routine, and I can only
explain as a miracle for him to be able to do. A miracle I wish I had the
answer to and wish I could give it to every parent on the planet quietly and
patiently waiting for it.
I have
made a lot of decisions in the past year that I have been judged for and often
times I have had to argue those decisions knowing the person or people on the
other end thought I was nuts but the only opinion I have ever cared about is my
son’s. Yesterday he didn’t just tell me he loved me, he also told me I’m doing
everything just right and so are the people who are in his life rooting for
him.
No comments:
Post a Comment